haemophelia

Parliament should bring back bleeding disorder bill

By Daudi Zirimala

The Minister of Health in Charge of General Duties Joyce Moriku Kaducu has called upon members of parliament to bring back the bill on bleeding disorders for debate to enable the ministry to plan thoroughly on bleeding disorders.

Speaking during the World Hemophilia day in Kampala, Dr Kaducu said that the bill was differed for further consultation when it was brought in parliament but it’s high time for parliament to debate again passes this bill to cater for hemophilia conditions.

She said that hemophilia foundation of Uganda is working hand in hand with the ministry of health to create a dedicated heamohopilia center in Mulago and regional referral hospitals and equip the centers with factors and reagents for testing heamophilia.

Heamophilia is an inherited genetic disorder that impairs the bodys ability to control blood clotting when blood vessel is broken and people with heamopholia do not bleed any faster than normal,they bleed for a much longer time.Over 2583 people are estimated to have heamophilia in Uganda and only 3.2% of the 2583 are diagnosed,96.8% remain misdiagnosed.

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